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Health2 min(s) read
Michiel Vandeweert, a Flemish content creator who documented his life with progeria, has died at age 28. His family shared news of his death in a statement obtained by the Flemish news broadcast VRT NWS.
Vandeweert was diagnosed at a young age with progeria, a rare and progressive genetic disorder that causes children to age rapidly starting around age 2. According to the Mayo Clinic, the condition typically results in a life expectancy of about 15 years, and there is no known cure.
Doctors once told Vandeweert that he would likely only live to age 12. He far surpassed those early expectations, eventually becoming one of the oldest living people in the world with the condition.
Through his Instagram, YouTube, and Twitch accounts, where he gathered a combined following of more than 90,000 people, Vandeweert posted regular gaming content alongside insights into his experience with progeria. At age 15, he published his memoir, Ik Ben Michiel (translated as “I Am Michael”), which focused on facing a short life expectancy and navigating daily life with the disease.
Earlier this year, Vandeweert and his 20-year-old sister Amber, who also has progeria, were featured in the documentary How To Be Alive: Amber and Michiel. A film crew followed the siblings over several months to highlight the everyday realities of living with the disorder.
News of his death brought widespread condolences throughout Belgium. Rik Kriekels, mayor of Diepenbeek where Vandeweert lived, shared his admiration for Vandeweert's outlook. "People sometimes complain and nag a lot about small things. When you look at how Michiel lived his life, you can only have admiration for that," Kriekels wrote, according to VRT NWS.
The soccer team KRC Genk, which Vandeweert closely followed, also published a tribute on Instagram on August 10.
"It is with deep sadness that KRC Genk bids farewell to Michiel Vandeweert. Michiel truly loved life and was a loyal Genkie. His courage and positivity were a source of inspiration to many," the post stated. "Our thoughts are with Amber, his parents, family, and friends. Rest in peace, Michiel. 💙"
health4 min(s) read
world2 min(s) read
world3 min(s) read
A social media influencer who has multiple personality disorders has declared her bid to end her life at a euthanasia clinic.
Olympe is a 23-year-old content creator - who goes by the handle @we.are.olympe on Instagram and @LejournaldOlympe on Youtube - and boasts 252K followers and 256K subscribers on the social media platforms respectively.
As reported by the Daily Mail, Olympe recently revealed to her followers that she was "in contact with doctors" in Belgium - where euthanasia - the act of deliberately ending a person's life to relieve suffering - is legal.
The internet star suffers from dissociative identity disorder - a mental condition that involves experiencing a disconnection and lack of continuity between memories, thoughts, actions, surroundings, and identity, per Mayo Clinic.
Watch Olympe's video below:However, she said that Belgian doctor Yves de Locht had told her that clinics were not "euthanasia dispensers" and that the process can take many months or years before an individual can use their assisted suicide services.
According to the outlet, Olympe lives with 40 different personalities and said on her social media page (translated from French to English): "In the last quarter of 2023 I will have recourse to assisted suicide in Belgium.
"I am already in contact with the doctors," she told followers. "It's not a debate. It's my life. It's a decision that I made which was difficult to take."
Olympe added that she could no longer control the condition or its causes, which allegedly include sexual abuse and locating between different foster homes.
However, the Brussels-based doctor told French paper Le Parisien that the country was weary of being painted as a place where people can willingly take their own lives.
"I haven't seen her medical dossier but I've read her emails. She wants to meet me," the doctor said. "We do not refuse to meet (people like her) but we explain to them that the process can last months or even years.
"This young woman has announced the end of her life at the end of the year. This date certainly doesn’t come from me. I need much more information before envisaging meeting her," he added.
The publication stated that the young creator emphasized that she has no desire of setting an "example" for her young followers, and encourages those with similar thoughts to her to "find people around them to lean on".
Euthanasia - withdrawing or withholding life-preserving treatments - is permitted in the Netherlands, Belgium, Germany, Spain, and Luxembourg.
Assisted suicide - giving someone the means to end their own life - is prohibited across most of Europe. However, in Switzerland, assisted suicide is legal but active euthanasia is not.
Meanwhile, in France, 170 members of a citizens' council have started discussing the nation's approach to end-of-life care and the lawful status of assisted suicide. Proposals will be submitted to parliament in March this year, per DNYUZ.
health2 min(s) read
A 26 year-old battling an incurable, fatal disease has bravely made a video to detail the first signs that diagnosed him in an effort to help others.
Mikey Stone, who posts on TikTok as @mikeystonemusic, opens up about being diagnosed with a ‘100% fatal’ neurodegenerative disease - receiving this life-changing diagnosis when he was just 25 years old.
Mikey suffers from Amyotrophic Lateral Sclerosis (ALS) also known as Lou Gehrig’s Disease, a rare disease affecting his motor neurons, the nerves that control voluntary muscle movement.
There is no known cure for ALS, and those diagnosed with the disease typically have a life expectancy of just three to five years following on from the onset of symptoms.
In his video, Mikey bravely opens up about his diagnosis, saying that ‘the nerves that control my body are dying. Slowly, I’m becoming paralysed.’
He continues: ‘People with ALS eventually lose the ability to talk, walk, eat and breathe.’
But perhaps the most important part of the video is Mikey helping the viewers to recognize the signs of the onset of ALS.
‘It started small,’ he explained. ‘I noticed my foot twitching and my muscles tightening. Then, the weakness crept in.
‘First my legs, my left arms, my hand…and it hasn’t stopped.’
Mikey goes on to say that, following his diagnosis earlier this year, he now uses a wheelchair ‘50% of the time’ and now needs a ventilator to breathe while sleeping at night.
But Mikey is not giving up.
‘I want to spread awareness,’ he says. ‘And encourage people to support ALS research because research means more clinical trials, better treatments and hopefully, one day, a cure.’
Amyotrophic Lateral Sclerosis (ALS) is the most common form of motor neuron disease (MND), which affects the nerves in your body that control the movement of your muscles.
Patients with ALS lose control of their motor functions, meaning they struggle to eat, talk, walk and even breathe.
In the US, ALS is also commonly known as Lou Gehrig’s Disease, named so after the famous baseball player Lou Gehrig, who had to retire in 1939 following the onset of the disease affecting his performance. Gehrig would die two years later, in 1941, aged 37.
Mikey has encouraged people seeking to support patients with ALS to donate to the Live Like Lou Foundation, who fund promising research in ALS. You can donate to the foundation here.
celebrity4 min(s) read
Raymond Harper, better known by his online persona Rolling Ray, has died at the age of 28, just days before his birthday.
The influencer and reality TV personality, who called himself “the most famous boy inna wheelchair,” rose to prominence through viral social media moments and appearances on MTV’s Catfish: Trolls, Divorce Court, and the Zeus Network dating series Bobby I Love You, Purrr.
His mother, Sazola Nay, confirmed the heartbreaking news in an emotional Facebook post. “It is with a heavy, heavy heart that I let you know that my son Ray Ray (@Iamrollingray) has gone home to be with the Lord. I thank everyone who has called or texted. This is going to be a long road.”
The TV star's cause of death has not yet been made public. According to the Express, his passing comes just months after he was rushed into intensive care, battling pneumonia and a blood infection when his breathing dropped.
Harper lived with Spinal Muscular Atrophy (SMA) Type 3, a rare genetic neuromuscular disease that causes progressive muscle deterioration and left him reliant on a wheelchair.
Speaking about his health in the past, he reflected: “At first they said I was going to die at 14 years old, years ago. The doctor was wrong, they told my mom that I was going to die at 14, but you know, science changed and doctors are not always right.”
Friends, collaborators, and fans have been left shattered by the news and are sharing tributes to the star.
One user wrote: "So sad to hear the passing of Rolling Ray. So funny and kind, I have so many funny moments and convos I’ll always remember RIP," while another penned: "Rolling Ray wasn’t just a meme. He was a disability advocate and was on the frontlines protesting against police brutality in the Summer of 2020. Hilarious, smart, and courageous. Will continue to yell 'I love the traiiinnnn' any chance I get. RIP"
The Zeus Network, which hosted several of Harper’s shows, also paid tribute. “Gone way too soon,” the network posted on Instagram. “Your Laughter, Light, & Loving Spirit will Live on FOREVER...You were Unapologetically & Authentically your TRUEST Self. From your ZEUS Fam, we Love, Thank, & will Miss you Always!"
Music star Cardi B shared a post on X, which read: "Rolling Ray was a menace lmaoo… but he changed soo much and became so positive. I know that soul made it to heaven…You will truly be missed BIG PURRRR!!!"
Screenwriter Angel Williams remembered him as a “real friend,” writing: “So heart broken. Omg was just talking to You a few weeks ago. You was always rooting for me. Even gave you sneak peeks of my scripts because you loved them so bad! You couldn't wait to film with me. So upset we didn't get that opportunity yet thankful I gained a real friend.
"You was so filled with life. Even when you was sick, you smiled, laughed and joked..... Rest in peace. Sleep easy Raynell . Sending love and condolences to your family and loved ones. Forever Rolling Ray," she added.
Singer-songwriter Bobby Lytes, who worked closely with Harper on Bobby I Love You, Purrr, said: “Damn. I tried to wait this one out, praying it was another rumor."
"Rest in Peace to the most famous boy in a wheelchair. We came together and showed the world how two different people from 2 separate paths in life can put hate aside and create magic.
"You are loved all over the world, and you will be missed dearly. Spread your wings and fly my iconic friend Rolling Ray," Lytes concluded.
Our thoughts are with Harper’s loved ones at this time.