TikTok star Hannah Campbell has shared the heartbreaking news that her baby daughter, Elliana Rose, has passed away at just 10 months old.
The content creator and advocate, who built a powerful online community documenting her little girl’s battle with a rare genetic condition, announced the tragic loss on Monday, April 7.
“In loving memory of Ellie,” Campbell wrote in a deeply emotional video tribute posted to TikTok. “She passed peacefully past night, wrapped in love.”
“I don’t know what to do with myself today. I’m heartbroken, and I’m angry. No child should have to endure what she did,” she continued in the caption. “EB stole her from us. Let’s fight for a cure so no other family has to feel this. Thank you for loving her with us.”
Many followers have taken to the comment section to send their condolences. One user wrote: "My heart aches for your unimaginable loss. May Elliana Rose’s memory live on in every soft breeze, every bloom, every quiet moment of grace."
Another said: "I’ve tried so hard to think of something comforting to say, but I have no words. It’s not fair. No mother should have to bury their baby, and I’m so so sorry. You were loved by so many, sweet Ellie."
A third added: "Her story will never stop. She has inspired the world and helped raise so much awareness for EB. Words will never make things easier. Take comfort in knowing she was loved by us all."
Elliana was born with junctional epidermolysis bullosa (JEB), a severe form of a rare skin condition that causes extreme fragility, at just two weeks old.
According to Mayo Clinic, “blisters may appear in response to minor injury, even from heat rubbing or scratching.” In more serious cases, those blisters can also form internally - including in the mouth or stomach.
Campbell never shied away from the harsh reality of her daughter’s illness. “It was heartbreaking,” she said next to her husband in a local television interview she posted in 2024. “It was really sad to hear that she probably won’t live past her first year of life.”
JEB, which is inherited and typically appears in infants or young adults, currently has no cure. Treatments focus on preventing new wounds and caring for existing ones. Though milder cases may see some improvement with age, junctional epidermolysis bullosa remains one of the most devastating types.
Campbell, who has used her platform to raise awareness, has been open about the brutal nature of the condition.
“Severe JEB often takes lives way too soon, and even the ‘milder’ form still causes daily pain, wounds, and lifelong challenges,” she shared in one of her posts. “There is no cure, but there is hope. Every child with EB deserves a future without pain. Spreading awareness leads to research, treatments, and one day a cure.”
Throughout Elliana’s life, Campbell documented their journey with raw honesty. She described the intense daily care her daughter required, including “constant wound care, special medical supplies and adaptive equipment to keep her comfortable and safe," per PEOPLE.
She detailed other support methods too - nebulizer treatments, humidifiers, carefully administered fluids, and alternating pain relief through Tylenol and Ibuprofen. Even Pedialyte was given via syringe to help soothe her daughter.
As her daughter’s condition worsened, Campbell didn’t hold back about the devastating reality they faced. In a gut-wrenching update over the weekend, she wrote: “She hasn’t opened her eyes, eaten, and can hardly cry. We’re holding her close and loving her through every breath. Please keep her in your heart.”
Still, amid the constant care and medical battles, Campbell, her husband Jacob, and their older daughter Ember found ways to soak in the beauty of their time together.
“Making every moment an adventure, knowing each one is a gift,” she wrote in February, capturing a video of Elliana during a snowy lake trip. “Filling her world with as much adventure as we can, for as long as we can.”
Just days before her death, Campbell offered one of her final updates on March 31. “Ellie’s body is slowing down, and we’re staying by her side, giving her all our love. Thank you for being part of her journey and holding us in your hearts,” she shared, overlaying the words on a clip of Elliana resting with her bottle.
The influencer created a fundraiser called Elliana’s Hope for Healing, aiming to support other families in similar situations and push for a cure by 2030. As of this writing, $13,438 has been raised, surpassing the $10K goal.
Our thoughts are with Campbell and her loved ones at this time.